Monday
Tuesday
Wednesday
Thursday
Friday
Saturday
Sunday
6:30 h
Getting up
6:30 h
Getting up
6:30 h
Getting up
6:30 h
Getting up
6:30 h
Getting up
7:30 h
Getting up
8:00 h
Getting up
7:25 h
Morning round
7:25 h
Morning round
7:25 h
Morning round
7:25 h
Morning round
7:25 h
Morning round
8:00 h
Morning round
8:30 h
Morning round
7:30 h
Breakfast
7:30 h
Breakfast
7:30 h
Breakfast
7:30 h
Breakfast
7:30 h
Breakfast
8:15 h
Breakfast
8:45 h
Breakfast
8:00 – 11:30 h
School
8:00 – 11:30 h
School
8:00 – 11:30 h
School
8:00 – 11:30 h
School
8:00 − 11:30 h
School
09:15 – 10:15 h
Psychomotoric training
9:00 – 10:00 h
Swimming
09:15 – 10:15 h
Psychomotoric training
9:30 – 10:30 h
Swimming
Or
9:00 – 10:00 h
Tidying up ward
Cleaning room
changing sheets
9:00 – 16:30 h
Visiting time
10:45 – 11:30 h
Musical therapy
10:00 – 10:45 h
Musical therapy
10:00 – 11:30 h
Cooking
11:30 h
Lunch
12:10 – 13:00 h
Group therapy session
12:30 h
Musical therapy
or
Group therapy session
12:30 – 13:15 h
Psychomotoric training
12:10 – 13:00 h
Group therapy session
13:15 – 14:00 h
Break, Time spent in the patient’s room
13:15 – 14:00 h
Break, Time spent in the patient’s room
13:15 – 14:00 h
Break, Time spent in the patient’s room
13:15 – 14:00 h
Break, Time spent in the patient’s room
13:15 – 14:00 h
Break, Time spent in the patient’s room
13:00 h
Start Stress Test
14:00 – 15:30 h
Art therapy
or
14:00 h
Sports
14:00 h
Sports
14:00 h
Sports
13:00 – 18:00 h
Visiting hour
15:30 h
Snack
14:30 h
Snack
14:30 h
Snack
14:30 h
Snack
14:30 h
Snack
14:30 h
Snack
14:30 h
Snack
16:00 – 17:00 h
Gym
15:00 – 18:00 h
Visiting hours
15:00 – 18:00 h
Activity planned by NET
15:00 – 17:30 h
Activity planned by NET
15:00 – 17:30 h
Visiting hours
16:30 h
End of visiting hours or Stress Test
17:00 – 18:00 h Swimming
17:45 or 18:00 h
Dinner
19:00 h
Organizational round
19:15 h
“Beef round”
18:30 – 19:30 h
Visiting hours
18:00 – 19:30 h
Visiting hours
18:15 h
Sports/self defence
19:30 h
Evening round
19:30 h
Evening round
19:30 h
Evening round
19:30 h
Evening round
19:30 h
Evening round
19:30 h
Evening round
19:30 h
Evening round
19:45 h (every day)
Night meal
Sleep/quiet time
Sleep/quiet time
Sleep/quiet time
Sleep/quiet time
Sleep/quiet time
Sleep/quiet time
Sleep/quiet time
6.2.4 Grand Rounds
Twice a week there are grand rounds lasting 2 h each. On the other 5 days, rounds are considerably shorter.
Apart from the permanent ward team (Sect. 6.2.2), the various therapists participate in the grand round. To work time-efficiently, the optional therapists participate partially, joining at individually prescheduled times (i.e., Thursday the physiotherapist participates from 9:30 to 10:00 a.m. while the grand round lasts until 11:00 a.m.). Grand round serves to extensively discuss all new referrals. Biopsychosocial and family background is presented using genograms (Sect. 6.6.1). Initial discussion of a new patient takes about 20 min; discussing the other patients is significantly shorter. All planned interventions are recorded in the meeting notes.
A small round is held every other morning. The NETs and the ward physicians participate in the small round to cover nursing and medical interventions. If any questions regarding therapeutic interventions arise, the psychotherapist in charge is called in.
6.2.5 Follow-Up Care
Strictly speaking, despite the Stress Tests during the stay (Sect. 6.6.6), inpatient pain therapy is nothing but a first preparation for the “real” pain therapy starting with the patient’s discharge. Discharge day marks the step from the safe inpatient setting with all its daily social, therapeutic, structural, and medical support into the stresses of everyday life. It is in everyday life that the child and his/her family have to stand the test of the successful implementation of the newly learned active pain coping strategies in family life, with friends, in their daily activities, or at school. In most cases they succeed, but this is not always the case (for treatment evaluation, see Sect. 6.8.2). Generally, patients visit the outpatient clinic 3 months after discharge for reevaluation. Since the child and his/her family often establish a therapeutic relationship with the primary psychotherapist, this therapist will always participate in the follow-up appointments. During those appointments the child and his/her parents can decide how useful a further follow-up appointment at 6 or 9 months after discharge would be. If the child and his/her family have implemented the learned therapeutic interventions into everyday life well (Sect. 6.8.2), most families decide on another outpatient appointment in the event of pain escalation.
In the event of a relapse after inpatient pain therapy, patients can get an appointment on short notice after talking to their primary psychotherapist (there is a quota of emergency appointments provided at the outpatient clinic). Often a second inpatient treatment can be prevented since therapists know the individual problems, pain symptomatology, and family dynamics and can, for instance, refresh the strategies proven helpful during inpatient treatment. If indeed a second inpatient treatment seems necessary, motivation for therapy and readiness to change should be tested beforehand using the interventions outlined in Sect. 6.8.3 (special case: readmission).
6.3 Inpatient Pain Therapy: Module 1 (Presentation, Setting Goals, Education)
“Stupid brain!” – Linja (12 years) during her education
This section presents various approaches, adapted to the patient’s age and knowledge, for setting realistic goals as well as education on biopsychosocial aspects of chronic pain, supplemented by hints on how to reduce somatic fixation. One section will focus on how to normalize an exaggerated body awareness arising from pain-related fears.
Education in the biopsychosocial model of chronic pain is a basic module of pain therapy. Starting with further interventions is not useful until the patient has understood this basic concept. This does not usually take more than two sessions.
When the education session starts, the child’s primary psychotherapist should address the patient by his/her first name and introduce himself/herself giving his/her full name, age, professional development, and experience; it may also be appropriate to give information on the psychotherapist’s family situation and his/her main professional interests. A reserved stance has a negative impact on therapy (Kuttner 1997). We therefore recommend that none of the professionals involved in therapy takes a reserved stance towards the child. From the very beginning, staff members should interact with the child, being the main client, in the way of professional service persons, and this is not only because it is ethically demanded but also because it enhances the motivation to cooperate. Taking such an attitude has an impact on cooperation since it requires certain rules to be followed: It is expected that the child will do the therapeutic homework as best he/she can. It might be helpful if the psychotherapist outlines his/her therapeutic attitude in order to give the child a chance to adapt to it or express concerns.
Example: Clarifying the Therapeutic Setting
“You should know that working with me also means laughing and I also like talking about your personal strengths. On the flipside I would like to be honest with you. If you can accept this, it has the advantage that you don’t have to bother wondering what I might mean. At the same time, it might be quite strange for you to hear someone else’s honest opinion about you. Finally, you should know that doing your therapeutic homework regularly is a prerequisite for successful pain therapy. If you don’t do your homework, the next scheduled session will be canceled, and you will lose time. If that happens several times (usually more than twice) we have to conclude that you are lacking motivation at this time, and unfortunately that would mean that we will have to discharge you before finishing the inpatient program.”
Some psychotherapists will find such an attitude too strict, especially clarifying the respective points within the first few minutes of the first patient contact on the ward. However, our experience with that is solely positive so far. Such an approach can also be advantageous for children with ambivalent motivation since it will soon be an issue and thus can be addressed early in therapy.
After the psychotherapist has introduced him/herself and the goals of treatment are clarified, we ask the child for any positive and negative experiences with previous pain treatment. Based on this experience, the child can express his/her idea of the therapeutic interaction and the therapy process. Often children prefer to avoid using set phrases such as “I understand this…” or “Gee, that is horrible.” Or they express the wish “not to have to lie down on a mattress and close my eyes.” Many of the children expect to be informed about the therapeutic methods so that they really understand what is happening. Some children state plainly what can be expected to be a common wish: to be taken seriously. Usually all these points can be easily clarified, so that in the next step the therapeutic goal can be (Sect. 6.3.1) checked in order to educate the child on the background of chronic pain. In most cases all that has been written so far is part of the first therapeutic session (generally taking place on the first day after admittance).
6.3.1 Setting Realistic Goals
“The pain should vanish forever.” – Nina (9 years)
Nina’s wish is understandable. But, if uncritically adopted for therapy, this would be a classic error in treatment, right from the start, for the following reasons:
The experience of pain is unpleasant but nevertheless universal. And not to forget, pain as a warning signal is indispensable for survival. While this can be easily understood for acute pain, it is not obvious at first glance for chronic pain. But even pain due to a pain disorder can be seen as a warning signal.
First, the chronic pain is not or at least not alone signaling a somatic impairment. However, it is a hint that the patient’s life is developing in an undesirable direction and that something has to be done in order to change it (e.g., changing to a more active way of life or better coping with stressors).
Second, if not tolerating any pain, the patient will perceive even the slightest pain as very disturbing, since “the pain is still there.” This will make a sustained change in body awareness very difficult. Thus, the goal of reducing pain presumably cannot be met unless the patient has achieved a more realistic attitude of acceptance.
Third, setting the goal to the total absence of pain is related to being stuck in the third “Thought Trap” (“The pain has to vanish, no matter what it takes” – see Sect. 4.1). In consequence, any success in treatment is perceived as smaller than it actually is, and therapy might be devalued by the patient or his parents (“Therapy was unsuccessful since my child is still tortured by pain.”). As a consequence the child’s and parents’ next step might very well be to get really stuck in the third “Thought Trap” and follow the radical and potentially harmful approaches arising from it.
In the small number of studies regarding this issue, it is assumed that a reduction of pain intensity by 2 points (NRS, 0–10) is perceived as a significant success by the child (Hechler et al. 2009). This data in mind, we recommend negotiating with the child and the parents to aim for a 2-point reduction in pain intensity during episodes of pain.
6.3.2 Education: The Vicious Cycle of Pain
It may be necessary to first explain the difference between acute pain (e.g., due to a contusion) and chronic pain before starting with the education on chronic pain. The following explanation will be understood by any 13-year-old adolescent with average intelligence.
Example: Education in Acute Pain
“We all know pain. Mostly, pain is a sign of injury or contusion, or of another illness (e.g. common cold; flu) or inflammation (e.g. infected wound; otitis media). Usually this pain will vanish even without any effort, since the body can heal small injuries or infections. Sometimes analgesics are helpful (e.g. with a flu). This kind of pain is referred to as acute pain. It is triggered by external or internal damage to the body.”
Although pain arises from simple physical damage, it is important for the child to understand that only our brain generates pain perception. Even with a burning pain in our hand when touching a hot stove, the perception of pain is exclusively in one specialized cerebral area. The following explanation directed to the child illustrates that pain perception is performed exclusively in our central nervous system.
Example: Introduction of the Pain Center
“In our example of the hand touching the stove, the pain signal is transmitted along neural tracts in our hand via the spinal cord along other neural tracts to the brain. This process is comparable to a telephone line. Much simplified, the pain signal is conducted via several hubs to a type of “pain center”. In this center the whole body, from head to toe, is mapped like a topographic map, and the area is named “somatosensory cortex”. The somatosensory cortex comprises multiple subareas. Each of them is connected to one distinct part of our body. The more important a body part is or the more complex the tasks it performs, the larger the cerebral area representing it. For instance, a pain signal originating in the hand is associated with the area of the pain center representing the hand. In conjunction with other cerebral regions, that part of the brain triggers the perception of pain. Even when the pain signal is still at the spinal level (before you perceive any pain), specific neural connections will make your hand retract, and you will become more careful in future. As you can see, due to this acute pain you only get a minor blister instead of a serious burn wound.”
Having given that more or less detailed explanation – depending on the age and knowledge of the patient – it is time to discuss any questions or misunderstandings that arise. If the child has no questions, the psychotherapist should continue.
“Now you know how acute pain is generated. But still, there is no explanation for how it is possible that you perceive pain even if there is no hot stove around anymore, or no appendicitis and no brain tumor. Chronic pain doesn’t signal acute danger; indeed, it is no warning signal at all. Factors triggering the pain can no longer be identified, but the pain continues, and in the end pain perception is poorly correlated with other factors. The origin of chronic pain is best explained with the help of the following chart.”
Now hand the chart “the vicious cycle of pain” over to the child and start explaining (Fig. 6.1).
Fig. 6.1
The vicious cycle of pain (Modified from Dobe and Zernikow (2013). Reprinted with permission)
“The chart “The Vicious Cycle of Pain” provides a schematic description of the mechanisms generating chronic pain. Let us start at the top. In the beginning there is an acute pain signal sent to our brain. If it is strong enough, or if we just focus on our body, it is “important” enough to our brain to be consciously perceived. This means that there are a lot of pain signals we are never aware of. Certainly you can remember an evening you suddenly noticed a bruise or a small scrape without having noticed when it occurred. This may even be the case with more severe pain signals. Think of football players being injured during a game and how they shortly afterwards focus on the ball and their opponent again, even though their body is still sending strong pain signals to the brain. I am sure you can imagine other situations where the pain signal is reaching the pain center only weakly, or not at all (ask the child for one or two examples). The most important question is: How is this possible? And why is this important to your pain?”
At this point you should carefully check that the child fully understood everything. Some of the children have their own interesting ideas concerning the last question. This is a good way to get to know and validate the child’s resources. But, since most children are not that familiar with the mechanism underlying chronic pain, it is advisable that the psychotherapist answers the question himself.
“Pain inhibition is possible because the brain is able to choose to focus on or ignore processes. The more attention we pay to our body, the stronger the body perception and thus the pain perception, and vice versa. Imagine you rush to school in the morning and bash your knee on your desk. Most probably you won’t notice it. If you lie down with severe pain, doing nothing else but focusing on the pain, you will perceive your pain more intensely than when listening to music or watching TV. Everyone who’s had the flu knows that. This is how it should be under normal circumstances. However, having a pain disorder makes everything different.
This is what happens: Although you are distracted (you are meeting friends or playing games), you more or less continuously perceive the pain. You may even wake up in the morning and know for sure that you had pain even while you slept – even if you actually slept through the night. In children with a less severe pain problem, permanent pain is susceptible to external factors (e.g. class test; quarrel; home cinema with friends) or distractions (e.g. music; movie; games). In severe pain disorders, pain is perceived as unchangeable by any situation or thought. It is important that you know that this process can easily be explained, though not when a severe bacterial or viral infection, inflammation, cancer, or other severe somatic disease is the cause of pain. Actually, we know that exactly the opposite applies: The more pain cannot be influenced by any external factor and the longer the pain persists, the more probable that it is not caused by one of those underlying somatic diseases (infection, inflammation, cancer, etc.).
There was a point in your life when your pain began. And at the beginning of a chronic pain condition we can often identify an infection, inflammation, other disease, muscular tension or an accident (note: here you should show an interest in what might have been the patient’s biologic trigger). But those somatic processes tend to either worsen or heal. Viruses, bacteria, and inflammation could certainly not permanently cause pain over several months or years while not showing up in medical tests. Acute pain caused by infection or inflammation is extremely accessible to factors such as distraction or posture.
Before I proceed with chronic pain, I would like to ask you whether you have any questions. What about you? Can your pain still be manipulated or has it already become inaccessible? By how many points can you lower your pain intensity in the very best circumstances (great movie in the cinema; holiday with your best friend; going for a horseback ride in the forest; thrilling computer game; etc.)? Are you still worried that a so-far-unknown somatic disease is underlying your pain and complaints?”
After all questions are satisfactorily answered, we summarize what we have learned so far on the vicious cycle of pain.
“To what extent can chronic pain be explained? As you see on the chart (Fig. 6.1), the pain has started somehow. It doesn’t come out of nowhere just to bother you. As you know by now, the degree of body awareness is of great importance. Depending on what you are focusing on, you perceive your pain as more or less severe, or you may not notice it at all. That mechanism can be compared to a gate. Let us call it the “pain gate”. If you are well distracted, the gate is kept closed or opens just a little bit. But if you aren’t distracted or if you focus on your body, the gate is wide open, and you perceive your pain more easily. You are here because you feel your pain nearly all the time. Why doesn’t the pain gate close anymore? How did it happen? In order to understand what’s going on we should proceed with the details of the vicious cycle up to the step marked “appraisal” (see chart). What does that mean? Human beings tend to think a lot, maybe too much sometimes. We evaluate everything that happens. We think about anything that comes to mind, our pain included.
I suppose you worry about your pain a lot, and you don’t think “Hey, it’s fine. I finally am in pain, I longed for it so much”. Otherwise you wouldn’t be sitting here with me right now, would you? (Wait for the child’s – in most cases – unambiguous reaction). Okay. I don’t know you well, but many of the patients report thinking “Why me?”; or “Oh no, not again! Will it ever stop?”; or “With the pain, there is no joy left in my life”; or “I can’t stand it any longer”; or “If I don’t lie down, the pain will certainly increase”. Maybe you know those or even worse thoughts (wait for the child’s reaction). As you have already noticed, those thoughts don’t make things better. As time goes by, there are often more and more of those even more negative thoughts – we call these “Black” Thoughts. Many of our patients describe this as a feeling of falling into a pain “pit” where they probably can’t get out by themselves. Typical thoughts are “All this doesn’t make any sense”; “Damn, no matter what I try I can’t focus anymore”; “I can’t go on like this”; or “It makes me mad”.
Our brain is programmed to compare things to similar ones. Therefore, it is likely that irrespective of our pain, further Black Thoughts become associated with other negative thoughts that are already present. The additional Black Thoughts could be related to our pain (e.g. former painful injury or surgical procedure) but do not necessarily have to be related. Actually, severe pain combined with Black Thoughts may well trigger stressful and traumatic life events and vice versa, if experienced. It is essential how we appraise our pain. If you have already experienced any stressful or traumatic life events, according to our experience, it is likely you will remember them together with the Black Thoughts during episodes of severe pain. If this happens repeatedly this will result in classic conditioning, i.e. memories, thoughts and pain mutually trigger and perpetuate pain. Have you personally had similar experiences?”
This is the time to check if the child reports on associations of Black Thoughts or memories and increased emotional distress resulting from these thoughts. If this is the case (even if the child simply nods with an inward gaze), we recommend responding, “Yes, you seem to know,” then proceeding with the education and exploring the associations in the next session. Otherwise, this bears the risk of losing the focus of the so-far successful education.
The next part of the education deals with the associations between thoughts, appraisals, emotions, and the resulting somatic responses.
“Black Thoughts alone don’t cause severe pain, otherwise there would be many people in the street screaming in pain. That is not the case. However, if Black Thoughts accumulate, our mood tends to darken, and depending on individual appraisals, helplessness, fatigue, anger or fear may become the predominant feeling(s). This means that Black Thoughts result in negative feelings. Feelings are named feelings because you can feel them, which means even a feeling as a bodily sensation is always a physical response. For instance, if you are totally relaxed with your heart beating smoothly and regularly, this shows you are free of fear. But you can’t feel happy if your body is tense or if you frown and look angry.”
A fun and lucid way to do this part of the education is to try together with the child to provoke feelings contrasting the bodily situation: sit down very relaxed – also relax your belly – and smile, and simultaneously try to get angry but stay relaxed or try to think about happy experiences while frowning and clenching your fists. The next section will show us how the resulting stress reaction leads to intensified pain.
“In the end, all those negative feelings are based on a physical stress reaction which will arise whenever something jeopardizes our personal well-being. Sometimes it may be enough to not be in the mood to perform an activity (e.g. housework or homework) and to have to force oneself to get it done. This stress reaction will be even stronger when negative thoughts or bad memories are present, or even when you have negative appraisals. Of course, stress reactions differ in their intensity. It is essential to understand that each Black Thought and each negative judgment will result in somatic reactions from small to large depending on the intensity of the thought. In conjunction with other somatic reactions, feelings arise which may be fear, helplessness, fatigue or anger. Black Thoughts and brief somatic stress reactions are totally normal; all people have their daily Black Thoughts.
However, much more problematic than isolated and brief Black Thoughts or brief stress reactions are prolonged ones. Pain itself will contribute somewhat to a stress reaction. It is, however, essential to see that not the pain signal itself but the appraisal of the pain is the main cause of the stress reaction. What makes a prolonged stress reaction so unfavorable, apart from the increased muscular tension, is its ability to cause pain sensitization. What does that mean?
It means that the same physical pain signal will be perceived as more intense. This indicates that “sensitization” has taken place. The sensitization can be compared to a highway being broadened from two to three lanes in order to make the traffic (=pain) flow better (=processing of the pain signal). In the pain center the enhanced pain signal provokes an intensified pain perception. Former pain experiences may lead to a further increase in pain.
From that point on, everything depends on how much I anticipate my pain, or how much I see the pain as a threat. The more I anticipate my pain, the easier the pain gate opens, and the more I worry about my pain, the more pronounced is the resulting physical reaction. In the end, the result is the same: pain is perceived more strongly due to the increased activity of the pain center. We are alarmed.
Chances to focus even more on the painful area of the body increase, opening the pain-gate wider. Consequently, body awareness will increase, and all fears and worries (Black Thoughts) are realized. The next round of the vicious cycle has begun.”
At this point, the child should summarize the education program’s essential points in his/her own words. Most patients already know the vicious cycle from their own experience; therefore, the task is not too difficult, and they will not need to ask many questions.
In the last section of the education program, we sketch the mechanism rendering chronic pain a pain disorder affecting all areas of life.
“If the vicious cycle repeats itself (3 months with pain on most days will suffice), pain memory starts to be consolidated. The same way our brain stores memories of a wonderful holiday, foreign language vocabularies, memories of a funeral, or the result of 100 minus 53, it will also store (learn) pain – and this rather effectively. Once pain memory is established it doesn’t matter anymore at which point of the vicious cycle the process starts. Your mother or grandmother asking, “Are you in pain?” will be sufficient to start the vicious cycle, even if up to that moment you were free of pain, or not aware of it. Negative feelings (anxiety, teariness) or muscular tension due to distress or physical (in)activity may activate the cycle, even if they are not associated with the pain. Slowly the body awareness will increase and at the same time your ability to be distracted will decrease. In the end, the pain is permanent and very strong, and is no longer accessible to any ameliorating factors.
In addition, parents or friends worry about you and will ask you about the pain, always reminding you of your pain. Recommendations to relax or lie down improve the experience. The search for a somatic cause of the pain along with many doctor’s appointments and various investigations make you more and more focused on your body. And since the one and only “cause” cannot be found, both Black Thoughts and passive pain coping become more frequent. Moreover, many patients worry about their parents, suffering from having a child in pain. Or the family atmosphere becomes tense and unhappy. Naturally, all this has an added impact on Black Thoughts and body tension.”
At this point you should review and discuss with the child how far his/her pain disorder has advanced. A lot of information was given, and you should offer time for further questions. If the child has no questions, the psychotherapist should ask, and answer, the most important question of all: “Will this pain processing remain unchanged, or can we do something to change it?”
“No, this pain processing does not have to remain the way it is now. It can change, since our brain has the ability to change. Fortunately, you are still young. Your brain is learning much faster than that of an adult as you may have already seen with your parents. The premises for change are that you understand that chronic pain is a disease on its own, which you can influence by altering attention processes, appraisals and physical reactions. The result is that in conjunction with active pain coping (doing a lot of activities irrespective of pain intensity) your intrinsic cerebral pain-inhibiting system is activated, and distraction and periods free of pain become possible again.”
If some of the older children (especially if gifted, above average, or very concerned about their body) wish more detailed education, we recommend explaining neuroanatomy with the help of figures (e.g., see Fig. 2.1 or Kuttner 2010).
At the end of the education program, the children should be familiar with the biopsychosocial dimensions of the vicious cycle of pain. Interestingly, knowing this background makes it possible for many children to step back from their dualistic world view (somatic vs. mental pain) and the three Thought Traps. All in all this education takes approximately 30 min, but the time needed varies of course with the age and giftedness of the child. If the child is somatic fixated, much more time is needed (up to 3 sessions, in rare cases even more) (see Sect. 6.3.3).
After this first education session, the child’s homework is to summarize the theory in his/her own words. This is essential in order to have a good idea of what was really understood. A basic understanding of the topic is an absolute prerequisite for a successful sustained treatment. According to our experience, even children with learning difficulties or dyslexia will do their homework if it was discussed at the very beginning of the education (Sect. 6.3). In addition, the child should make brief notes on what he/she tried so far to distract him/herself from pain (→ interruption of body awareness), which colorful thoughts he/she tried (→ interruption of Black Thoughts), or which technique he/she tried to relax (→ interruption of muscular tension).
The child is explicitly told to note all efforts undertaken irrespective of their effectiveness. That homework is a good basis for deciding which pain coping strategies (Sect. 6.4) are the best to begin with in this patient and also for evaluating therapy motivation.
The following written summary is the homework of Rabea, 14 years old, average intelligence (IQ: 105), and illustrates the amount of information a child can learn in one session.
Example: Rabea (14 Years), Pain Disorder, Underlying Migraine
“Pain results from transduction of a stimulus. The pain signals reach the brain along neural tracts and have to pass a gate where they either recoil or pass. The gate determines the intensity and the amount of pain being let through. How much pain will pass depends on current awareness of the body. When we focus on our body, pain is stronger than when we are distracted. Pain may be blunted or enhanced by joy, anxiety, good memories or bad ones, as well as by muscular tension or relaxation. All this happens simultaneously and the pain is generated within the brain, in its pain center. The pain center memorizes the pain. So, if the same pain signal more or less reaches the brain repeatedly, the brain will assume that it is much easier to continuously produce pain than to transmit the signal, impulse by impulse. This is how chronic pain is generated, even if no pain signal reaches the brain anymore.”
6.3.3 Somatic Fixation: Pain-Related Fears and Anxiety Sensitivity
“But I do feel that there is something real. This can’t be just imagination.” – Mirjam (16 years)
By means of the education session, as described in Sect. 6.3.2, most children and their families will be reached and motivated for pain therapy irrespective of the severity or chronicity of symptoms. However, in families with pronounced somatic fixation, education is a big challenge, as they have a selectively distorted perception of body signaling as a malign somatic pain producing process.
People with a tendency towards somatic fixation do not necessarily doubt the truth of the education or the process of modulating pain, since the relations are familiar to the child and the family from everyday life experiences. Rather than having a problem with the pain itself, they worry that the pain is a symptom of a threatening somatic process. As long as the child and the parents are stuck in that assumption, pain therapy doesn’t make sense and will not be successful. The following chapter is on the special educational needs and measures necessary to build up a trusting relationship with a child and his family with somatic fixation.
6.3.3.1 Supplemental Background Information on Chronic Pain
Acute pain alerts the body. It serves to make us quickly realize potential threats and initiate action to eliminate the cause of pain and reduce the pain. Hence, pain is always accompanied by feelings of fear and threat. In a child, the degree of increased pain-related anxiety is determined by three processes. These are attention to the pain, the amount of pain-related catastrophizing, and pain-related behavior. The most important facts underlying the biopsychosocial model of chronic pain are summarized as follows:
1.
As a potential threat, most acute pain stimulus result in increased vigilance and attention to that signal. Thus acute pain signals in most cases will interrupt the attention to signals simultaneously present (Crombez et al. 2005). Crombez et al. investigated the construct of hypervigilance towards pain signals extensively and concluded that both hypervigilance and pain signals are outside conscious control, occurring early in case the threat is perceived as high, the anxiety system (= part of the limbic system) is activated, and the individual tries to escape the situation to avoid pain.
2.
People differ as to how much they direct their attention to painful stimuli. Supposedly, on the one hand early pain experiences may determine sensitization to and focusing on painful stimuli (Hermann et al. 2006; Hohmeister et al. 2010). According to our experience, on the other hand children whose limbic system is already activated by a high emotional burden sense pain more easily and as more threatening.
3.
Catastrophizing – the habitual and fast appraisal of a situation as extremely catastrophic has become one central construct for the understanding of cognitive processing in patients with chronic pain. In many investigations it was a significant predictor of perceived pain intensity and functional or emotional impairment (Sullivan et al. 2006). In studies on children and adolescents, patients with increased catastrophizing on a painful event reported more severe pain and impairment (Crombez et al. 2003).
4.
Not only the child’s but also his/her parents’ catastrophizing has a great impact (Goubert et al. 2006). The latter is significantly correlated with the patient’s pain perception and impairment. Perhaps parental fears lead to increased parental distress and that reaction is interpreted by the child as a warning signal (“If my parents are concerned, the situation must be precarious.”), resulting in increased anxiety and impairment of the child. According to Eccleston and Crombez (2007), the daily worry about existing pain is also important for therapy. These authors see these worries as a chain of negative thoughts and the precursor of catastrophizing.
The degree to which pain-related behavior predicts the pain perception of children or adolescents is explained by the “fear-avoidance model” of Vlaeyen and Linton (2000) which was recently hypothetically adapted to paediatric pain (Asmundson et al. 2012). Pain as a potential threat leads to increased anxiety and tension. Cognitive processes such as fear of pain may result in situations or movements being erroneously considered as threatening. Those appraisals make the patient avoid certain situations or body movements in order to evade the pain. Especially in patients with backache, such behavior will result in increasingly restricted mobility and even more pain in the long run. According to the theory of Vlaeyen and Linton (2000), the fear of pain has more impact on the patient’s life than indeed the perceived pain itself. The patient’s fear of pain is dependent on the extent to which he/she is able to fearfully perceive physical processes in his/her body (anxiety sensitivity). Increased anxiety sensitivity is closely associated with fear of pain. In a study of 21 children and adolescents suffering from chronic pain, Martin et al. (2007) were able to demonstrate that premorbid anxiety sensitivity is a predictor of fear of pain. Presumably, anxiety sensitivity is associated with maladaptive interoception. Thus, anxiety sensitivity modulates pain perception to a considerable degree and has a strong impact on pain-related behavior (see Sect. 6.4.6.1 for a detailed account of the theoretical background of fear of pain and anxiety sensitivity).
What are the practical consequences of all this theory for the education session?
6.3.3.2 Education for Families with Increased Somatic Fixation
It is important for children and parents with a somatic fixation that all their perceptions and fears are taken seriously. From a psychotherapist’s viewpoint, it is important to evaluate the somatic observations but at the same time refuse the underlying irrational assumptions. This may be a challenge since every child knows cases from the family, the newspaper, or TV – and even if it is just one case – in which a malignant disease was not recognized on time. Counteracting these fears by recognizing them as being normal may help to avoid any dysfunctional conflict about the “right” perception. Most patients will usually be ready to follow the pain education supplemented by the information above. Asking the child to explicitly scrutinize that information with respect to his/her own case will motivate him/her to continue work. As a next step, we discuss the child’s own biological concept of permanent pain. If he/she has a sense of humor, it is quite easy to quickly find a common basis, as the following example will illustrate:
Case Report: Dustin (Age 15 Years), Pain Disorder with Abdominal Pain
“I mean… how could it be possible? There cannot be viruses or bacteria agreeing to “Let us only reproduce and spread so much that we permanently cause the same amount of pain”. Then it can’t be a tumor or an inflammation. What kind of tumor or inflammation would not grow or spread? Any tumor grows, increasing in size, causing more and more pain. Any inflammation either gets worse if the body can’t stop it, or is extinguished or at least attenuated by the body’s immune system. Sometimes inflammations may change like waves. But they will never remain at the same biological level for long, provoking stimuli of constant intensity. Did you ever think about that? And to be honest, your body would fight against it and not just wait while thinking “How lovely, a tumor or inflammation!” Of course it is true what you say or perceive. But there are many reasons why the body could react the way it does and why pain is perceived in the brain. Even if the highly improbable is true and there is still a small, undetectable inflammation in the body – did the search for it so far help you in any way to better deal with the pain? Was the benefit worth the effort? Or wouldn’t it be better to at least be able to alter the pain irrespective of its cause?”
Questions aiming at the cost/benefit ratio are easy to understand by the affected children.
“Do you think it would hurt you to leave “the search for the origin of your pain”? Various investigations have currently shown that your body does not seem to be endangered.”
Even if no question about the child’s physiologic processes and their interaction with body signals were left unanswered, we have to acknowledge that there will never be 100 % security in life, as some of the smart children will point out. In those cases it has always been helpful to ask the child to make a list of pros and cons with respect to a so-far undetected severe somatic disease being responsible for the pain. This task ends with a decision as to which way to go and which way is worth living. This decision should be taken solely by the child (or if too young, together with the family) taking all the facts into account – try to leave your personal opinion out. If the decision is not to give up the search for “the” one and only cause (the still undetected disease), pain therapy doesn’t make sense and should be stopped. The psychotherapist should never be hurt by such a decision. Instead, he should offer to start pain therapy when the child and the family are ready.
6.4 Inpatient Pain Therapy: Module 2 (Pain Coping Strategies)
“The pain is always there, no matter what I do.” – Mirco (15 years) at admission
In the following chapter, we describe the pain coping strategies we use for inpatient pain therapy at the GPPC. Starting with the vicious cycle of pain (Sects. 6.3.2 and 6.3.3), there are several points where the cycle may be interrupted. Distraction aims at altering body awareness, cognitive restructuring aims at minimizing Black Thoughts, systemic interventions aim to reduce the feeling of guilt or the burden of pain on family life, and relaxation training targets muscular tension. Various types of exposure techniques aim at reversing the process of chronicity and sensitization by trying to decrease the fear of pain and pain catastrophizing or to decondition negative emotions and related pain perception. You will need 6–10 therapeutic sessions to teach those strategies. Transcutaneous electrical nerve stimulation (TENS) and biofeedback therapy is applied to all children (except in abdominal pain: only biofeedback) from the very beginning of inpatient treatment and is performed by specially trained staff of the NET. Pain provocation, as a technique of interoceptive exposure (see Sect. 6.4.6), won’t be offered until the end of the stay and not before at least one pain coping strategy has been successfully implemented.
Having clarified all questions with regard to the education sessions or therapeutic homework and having appropriately complimented the child, a decision is made by the child whether he/she wants to first learn a strategy to reduce pain awareness (e.g., distraction technique), to influence Black Thoughts or a relaxation intervention. For this decision we use the list of pain coping attempts applied in the past which was put together by the patient. Although the child has not learned the first pain coping strategies before the third day of the stay, an active daily routine (in vivo exposure) irrespective of pain is pursued by the NET starting from day one.
6.4.1 Techniques That Alter Body Awareness
“Try to distract yourself!” – A mother prompting her child with chronic pain (This is a typical but not very helpful intervention in families with children suffering from chronic pain.)
Although this prompt may seem helpful, from the child’s point of view it is not. It may be an expression of the parents’ helplessness or temper. Why is that prompt not experienced as being helpful?
Distraction, i.e., a decrease in attention towards acute painful stimuli in acute pain resulting in pain inhibition, belongs to the standard repertoire of human behavior. Fearfully increased pain-related body awareness combined with passive pain coping and an exaggerated tendency to catastrophize make it more and more difficult to actively diminish attention towards physical processes. With severely prolonged pain, even the best distraction technique (e.g., watching a thrilling movie together with a best friend) will only cause a very small pain reduction. If a child tells us that the pain was unchanged during the movie, this is no lie of a wailing child trying to get attention, but probably an adequate description of his/her experience. With less prolonged pain, “positive” activities like horseback riding, playing, or being with friends result in better distraction and pain reduction.
Before working on a new distraction strategy, you should ask your patient about his/her current ability to distract himself/herself and how strong the distraction could be at most. An 11-step numeric rating scale (0 = no distraction at all; 10 = maximal possible distraction) serves this purpose best. You may ask:
“Well, Jenny, how much do you think you are currently most able to distract yourself? As I know, you like to go to the movies with your friend, or you like to listen to loud music. Imagine you are sitting in the cinema together with your friend, you are thrilled, and the music is as loud as it can be: tell me how much your maximum distraction is then? Please use the scale from 0 to 10 that you are already familiar with.”
What is the significance of the child’s feedback for the therapeutic process? If a child reports a degree of distraction of 8 or higher, his body awareness and pain perception can still be modulated. With a degree of 4, however, even a massive stimulus satiation will probably have little or no impact on the pain perception. In such a case it may be advisable to introduce elements of acceptance-based techniques early in the therapeutic process (Sect. 6.4.3.3), since a fast change in pain perception (be it due to a comorbid depression or a prolonged chronicity of body awareness) may be impossible. Before such a decision is made, the child should be asked for his/her estimate of how helpful the reported distraction was for the pain, because for some of the children sometimes even a degree of distraction as low as 3 can be helpful.
Besides external methods of distraction (games, friends, etc.), there are in principle two different approaches to reducing body awareness:
1.
Mindfulness-based approach
First, we can reduce body awareness of pain by increasing our current focus on sensory perceptions (mostly with regard to sight and hearing, but partly also feeling as it applies to unaffected body parts) that are incompatible with the perception of pain.
2.
Distraction-based approach
Secondly, we can also achieve a reduction in body awareness by an increased focus on cognitive or imaginative tasks or themes that are also incompatible with the perception of pain.
6.4.1.1 Mindfulness-Based Techniques
Body awareness may be reduced by focusing on sensory perceptions incompatible with pain perception. Focusing on sensory perceptions (external or internal stimuli) is also well suited to the regulation of emotions and for controlling stressful memories (e.g., for experiencing flashbacks of traumatic or critical life events; Sect. 6.5.2). Hence, those techniques are also used in trauma therapy.
One version of a mindfulness technique is the adapted version of the 5-4-3-2-1 technique and can be found in Chap. 9 (instructions included; Chap. 9, Worksheet #8).
In this technique the child focuses first on five different things he/she sees, then on five things he/she hears, and then finally on five different bodily perceptions (incompatible with pain) that he/she can feel. Then the child begins again, but concentrates each time on just four different things. In the next round, the child concentrates on only three things, and so on. The child’s ability to concentrate on that which he/she really perceives is crucial to the success of the exercise. Some children do better when they recite each of these perceptions out loud to themselves. Some children love to run through this exercise quickly; others take a lot of time with it and enjoy the quiet and relaxation it produces or use the technique to get to sleep at night. It often happens that a child will experience the bodily perceptions as rather unpleasant, as the increased attention to interoceptive stimulus results in stronger pain perception. In this case the child will be encouraged to focus on sight and hearing (possibly on smell). Finally, many children reject the given structure (5-4-3-2-1). But the exact structure of the technique is not significant to its success. This is rather determined by the extent to which the child is able to concentrate on the present sensory stimuli. Alternating between sight and hearing (1-1), for example, without focusing on feeling, can also work well, as can closing the eyes and concentrating exclusively on various noises that are perceptible in the moment. Increased practice will reveal which variant of the technique best suits the child, whether it be slowly concentrating exclusively on hearing and feeling, the 5-4-3-2-1 or another structure. In the instruction in the 5-4-3-2-1 technique, it is very important to portray the described structure as just one possibility which can be changed to suit the needs of the child. Children should therefore try out various variants in order to be able to decide which suits them best.
This technique is especially suitable for children aged 13 years and older. You should plan on 30 min for giving the instructions as well as teaching the technique and another 10–20 min in upcoming appointments to discuss with the patient what was good and what was difficult. In order to decide whether this technique is suitable for the child and which part of it is especially suitable, the child should practice it well – at least three times a day. He/she should make a table with three columns, i.e., the time, which variant was used, and how successful it was. The procedure is illustrated in the next case report.
Case Report: Marlies (15 Years), Pain Disorder with Backache
Marlies reported that the exercise did not work that well (version: alternating sequence of seeing, hearing, feeling; speed: fast; describing the sensations out loud to herself). When exploring the exercise it turned out that especially the seeing part didn’t work (degree of distraction: 3), while hearing (degree of distraction: 7) and feeling (degree of distraction: 9) worked well. Whenever Marlies focused on viewing she was “catapulted” out of the concentration which made the whole technique less successful (degree of distraction: 4 to 5). In consequence, we decided on a change, i.e., to cancel the “seeing” part. Practicing the modified technique, a distraction of 7 was reached.
6.4.1.2 Distraction Techniques
Body awareness can be reduced by focusing on topics incompatible with pain perception. As often practiced in everyday life or in the treatment of acute pain, in its simplest form this technique may comprise remembering one’s birthday or great holidays or doing simple counting exercises. But, this is often not enough to reach an elevated distraction score as needed in the treatment of pain disorders.
Of course the exercise should be neither too demanding nor too simple so that its cognitive requirements don’t render it unsuitable to some children. The distraction-ABC exercise that we have developed has turned out to be especially beneficial to children from about the age of 8, as it can be adapted in endless variants in order to be suited to each child’s age and abilities. This technique involves searching for words beginning with each letter of the alphabet within certain preset themes. These could be, for instance, animals – or horse breeds – (much loved by female children), or car words-ABC, or sentences-ABC, in which each succeeding sentence begins with the next letter of the alphabet. At higher levels of complexity, some of the children’s favorite sensory channels are included. For example, some older adolescents love the juke box version, in which songs are played in their heads (for approximately 10–20 s), also in alphabetical order. Even more complex is music video in which a music video is played through along with its corresponding song. These more complex levels of the exercise require the patient to be able to imagine the relevant sensory channel, be it sight, hearing, or feeling. We usually get indications of the preferred sensory channels during the education sessions and evaluation of diagnostic resources (see Chap. 9, Worksheets #1–6). Of course, we can always simply ask the patient (“Do you know music well enough to be able to play it in your head?”).
The distraction-ABC may be roughly categorized into four degrees of complexity:
1.
Grade I. Animals, automobiles, horse breeds, single sentences (each sentence has to start with the next letter), and short stories in which the keywords start with next letter.
2.
Grade II. For this level of complexity we add another sensory channel. In the “juke box,” for example (the first 10–20 s of a song are imagined, with the title or artist in alphabetical order), a grade I distraction-ABC is combined with the auditory channel. It goes without saying that with those higher degrees of complexity, the child must be well able to imagine the respective sensory channel(s) which usually becomes obvious in a resource-oriented exploration during the first two appointments. Imagining touching one’s house pet (or most loved animal) is another popular scenario, as are films or video clips watched in alphabetical order. Some children love to imagine painting pictures of words chosen in alphabetical order; still others imagine forming the word out of plasticine.
3.
Grade III. The distraction-ABC with two additional sensory channels is even more complex. The favored version is the “music video” where not only some music but also the respective video clip must be played in alphabetical order (grade I distraction-ABC + auditory channel + visual channel). Other possibilities are to play clips from various favorite films or scenes (with images and sound) from books, all also in alphabetical order. A grade III distraction-ABC can also involve swimming in the ocean and touching plants and fish, imagined in alphabetical order.
4.
Grade IV. The distraction-ABC is mostly combined with or integrated into other imaginative techniques. For instance, the child and an imagined helper (e.g., a magical animal) have to perform a distraction-ABC together at a “Safe Place” (see Sect. 6.4.2 for a description of “Safe Place”).
In Chap. 9 (Worksheet #7) you will find instructions for the technique and several examples. Adolescents especially love the numerous possibilities and are eager to develop their own distraction-ABC. The examples presented here represent only a fraction of the many variants that have so far been developed by the children themselves. Therefore, the distraction-ABC is one of the most powerful interventions for treating even children with severely chronified pain disorders.
6.4.1.3 Combining Mindfulness and Distraction
The 5-4-3-2-1 technique and the distraction-ABC may well be combined. Such a combination is especially suited to children with general anxiety or hypervigilance due to trauma. An external focus increased by anxiety predisposes a child to the 5-4-3-2-1 technique, but the effect of this technique alone is sometimes not strong enough. In the combined version the child searches for visual or auditory clues (viewing, hearing, not feeling) in alphabetical sequence (A = hearing an automobile, B = seeing the beard of a therapist, C = seeing a computer, D = hearing the barking of a dog, E = …). Some children love to do this without an alphabetical sequence (i.e., S = snack, G = glasses, a = …).
6.4.1.4 Modification for Younger Children or Children with Learning Disabilities
The distraction techniques presented here are not ideal for children younger than 8 years or with a pronounced learning disability. Simpler versions of the distraction-ABC are better suited, e.g., variations of the game “I spy with my little eye” or the search of the surrounding area for a certain number of things with a certain color or shape (“Find 10 blue objects, then 10 red objects.”). Another technique is to imagine stories on a given subject, e.g., the favorite doll.
Depending on the degree of pain chronicity, body awareness and pain perception may initially only show a weak and brief modification (seconds). But with ongoing practice, the effect is less transient. This is the reason why the child has to practice several times daily apart from the therapeutic sessions.
6.4.2 Imaginative Techniques: Better Mood
“Whenever I’m down I visit my Caribbean island” – Jana (age 12 years)
All imaginative techniques aim at the regulation of emotions and thus the conscious modulation of one’s mood for the better. For this reason, imaginative techniques are used in pain therapy.
For inpatient pain therapy, the standard procedure is to teach the “Safe Place” in an age-appropriate way. For the youngest children, we use a variation of imagination techniques called “Pet on my Belly” or “Pain Fighter” (see below).
We teach other imagination techniques like “screen technique” or the “Safe” (see Sect. 6.5.2) only if in addition to chronic pain, there is a substantial emotional burden caused by stressful or traumatic memories. Those two techniques will be presented in detail in Sect. 6.5.2.
6.4.2.1 Safe Place
The child is invited to imagine a place (a real place from the past or present or an imaginary place) with as many sensory qualities as possible (seeing, hearing, feeling, smelling, tasting). For the individual child this “Safe Place” should be associated with feelings of security and safety. Mediated by the evoked positive physiologic reaction of relaxation, the aim is to positively influence both mood and body awareness and possibly also negative memories, thoughts or perceptions.
Depending on the patient’s feeling of familiarity with imagination techniques and his/her ability to visualize, we need 2–4 single sessions lasting between 10 and 40 min to teach and discuss the respective techniques. The first session is used to explain the exercise and its goal. When the child fully understands all information, explore his/her ability to evoke vivid imagery (use questions like “Can you imagine things in pictures?” or “If you imagine your last holiday, do you see any pictures with your inner eyes?”). Most patients will react unambiguously (e.g., intense thinking with a frown vs. “Sure, everybody can do that.”). If children with a vivid imagination agree to do the technique, the next step is to find a suitable “Safe Place.” It could be a real place from the last holiday, the patient’s room, a fantasy, or a fantasy construct from the movies (e.g., Lord of the rings or Twilight). Any place is allowed as long as the child associates security and safety with it. Having identified a suitable place, the patient’s homework is to write down in short descriptions what precisely he/she is seeing, hearing, feeling, smelling, or tasting at his/her “Safe Place” (Chap. 9, Worksheet #12).
In most cases no real people should be present at the “Safe Place” (animals and fictitious people are allowed, i.e., from movies, games) in order to avoid transferring relationship problems with a real person to the “Safe Place” which would then make it unhelpful. Sometimes a child wishes to also have a beloved person in his/her “Safe Place.” If this person is associated with feelings of security and is not ill, it is worth a try. It is no obstacle if the child is unable to describe the “Safe Place” with all the mentioned sensory qualities. In case the child spontaneously names two “Safe Places,” he/she should try a detailed description using all sensory qualities for both places. Usually the child will know intuitively which one is better suited. In the next therapeutic session, only one “Safe Place” is practiced.
Instruction on the “Safe Place”
The child is asked how much he/she is satisfied with his/her notes (or if anything should be added or omitted) and how well he/she could already imagine the “Safe Place” while making the notes (scale 0 to 10; 0 = I couldn’t imagine it at all; 10 = I visited my “Safe Place”). A score of 4 or less should trigger the question concerning what exactly the difficulty was (e.g., too loud, impossible to picture the place, bad memories, or body feeling). Generally, all difficulties arising during the task should be taken seriously. Usually any difficulties are important aspects for pain therapy. If the child can imagine the “Safe Place” well and any difficulties can be overcome, the child is instructed to sit in a comfortable position, eyes open or closed – just as he/she likes. He/she is told to listen to the psychotherapist reading out the list of cues exactly as they were written down. Having finished, the child is asked how well he/she could imagine the “Safe Place,” if anything should be added or omitted, and if reading speed and intonation have been pleasant. The technique is practiced in this and the following sessions (don’t forget the homework (see below)) until the degree of imagination is at least 8.
For homework the child is asked to practice the “Safe Place” and to document the degree to which he/she achieves clarity of imagination each time. In addition, a talented child may paint his/her “Safe Place” in order to establish another emotional approach to the exercise. Asking this of a child without talent risks devaluing the exercise, due to the tendency towards overachievement and self-criticism often found in children with chronic pain. Since it is not the aim of the exercise to discuss the patient’s dysfunctional thoughts, you should ask the child in advance if he/she feels confident in painting the “Safe Place” in a way that will satisfy him/her. If the “Safe Place” is a real place and photographs of this place exist, it makes sense to look at them while doing the exercise.
6.4.2.2 Pet on My Belly
A special version of the “Safe Place” is described by Seemann et al. (2002) (“children with headache,” only available in German language). They name it “Pet on my Belly.” Instead of a place, an animal is conveying safety and security. This version is less dependent on the ability of abstract thinking and is thus well suited to younger patients. However, the child must be able to imagine emotions and touch. Since the exercise is meant to be a relaxation technique and the setting is predefined in the instructions, we modified this technique. Especially younger children who see their pet as a source of comfort are very susceptible to exercises involving their pet. Also children with a strong imagination who like animals but do not have a pet themselves often enjoy imagination exercises with animals as a central anchor. The pet involved should not be sick or very old such that its death is foreseeable, a point that should be determined explicitly. Especially younger children like to repress those facts. To maintain the positive features of animal imagination independent of the context, biography, and the child’s abilities, we recommend a procedure following that of the “Safe Place.” In younger children it is helpful if the psychotherapist collects the cues together with the child and the psychotherapist writes them down (Chap. 9, Worksheet #12). Often a numerical rating scale (NRS) is too abstract for children younger than 9 years. In this case you may substitute the numeric imagination score by verbal denotations such as “excellent,” “good,” “moderate,” and “bad.”
6.4.2.3 Pain Fighter
Imagining a Pain Fighter or a creature from fairy tales is supposed to reduce the child’s helplessness by supporting the child in his/her efforts to cope with the pain. In accordance with the previously presented imagination techniques, the child is instructed to imagine with as much detail as possible. Together with the child the psychotherapist should consider in which way the Pain Fighter could support pain coping. Please find below three examples:
1.
The Pain Fighter has magical power and will transfer the power necessary for active pain coping to the child.
2.
The Pain Fighter is a huge eagle, carrying the child through the sky to easily escape his/her severe pain.
3.
The Pain Fighter is a tall knight who puts the malicious pain monster to flight with his sword.
This imagination technique is trained and practiced the same way as the “Safe Place” or “Pet on my Belly.” The technique especially suits children younger than 12 years. The Pain Fighter arises from a very infantile fantasy in which the pain is considered an opponent. This technique – at least as presented – is not recommended for children aged 13 years and older. In those patients it should not be the primary aim to fight the pain as an enemy. It is sometimes difficult to explain this to the younger child. For older patients we recommend the “internal helper” well-known from trauma therapy (Reddemann 2005; only available in German language).
6.4.3 Cognitive Strategies: Seeing Things Differently
“My therapy includes evaluating my thoughts. By now I’m confident that a life with pain is possible, and I am much more relaxed in many situations. I would have never thought that in the beginning.” – Maria (age 15 years)
The approach for children aged 8–12 years tends to differ from that for older patients. The former will benefit from classical positive self-instructions and can generally modify their thoughts more easily. Approaches where thoughts are extensively discussed are of only limited use in children aged 10–12 years and not suited at all for younger children.
There are two fundamentally different approaches to dysfunctional thoughts and appraisals perpetuating pain symptoms. Dysfunctional thoughts and appraisals are either modified or replaced by more helpful thoughts (cognitive restructuring). Otherwise, the patient has to learn to accept and observe the various dysfunctional thoughts, appraisals, and cognitions in a neutral way and direct his/her behavior towards longer-term positive targets, independent of dysfunctional thoughts and perceptions (acceptance-based approach). In less severe pain disorders pain is not yet that chronic that it is perceived as unalterable. In our experience, cognitive restructuring is the best strategy for those cases. In severe pain disorders it may, however, be advisable to apply an acceptance-based approach. Importantly, this approach is less suitable for children aged 13 years and younger. Their pain symptoms are still accessible to modification, and a worldview based on change works better.
First, we present several methods of cognitive intervention in which children with dysfunctional cognitions challenge and dispute their cognitions in order to be able to use more helpful thoughts and appraisals in the future. If applicable, we point out age-specific peculiarities. Then we present an acceptance-based approach, suited for older patients with long-standing constant pain symptoms, where cognitive interventions aiming at modification are less promising.
6.4.3.1 Methods for Cognitive Restructuring
Usually children are very quick to spot dysfunctional thoughts and change them with the appropriate support. As with adults, cognitive restructuring is a multistep approach:
1.
Development of an age-appropriate cognitive model
2.
Extraction of dysfunctional cognitions and assumptions
3.
Questioning of old dysfunctional cognitions and creating functional new ones
4.
Practicing the new functional thoughts.
In this chapter, we simply focus on describing the implementation of this cognitive restructuring in pain therapy. For a comprehensive presentation of approaches to cognitive restructuring in children, see Stallard (2005) or Schlarb and Stavemann (2011).
Step 1: Creating an Age-Appropriate Cognitive Model
It is fundamental to any cognitive approach that the child understands why examining his/her thoughts is a significant part of therapy. This understanding will motivate him/her to search for dysfunctional patterns in his/her thoughts. The basic assumption of the cognitive approach is that dysfunctional thoughts, assumptions, and cognitive schemes result in negative feelings and behavior.
A prototypical dysfunctional pain-related cognition is the set of assumptions underlying somatic fixation. If a child believes that the physicians did not search long and hard enough for a physical cause of the pain, he/she will be fearful or insecure and ask for further investigations. Those additional investigations will in most cases yield no pathological findings, thus confirming the child’s thoughts (“They’re not finding the underlying cause.”), or will deliver results with pathological findings which are, however, not to blame for the symptoms and are thus irrelevant (e.g., a slightly conspicuous EEG or an increased C-reactive protein) but further increase the fear.
It is best to start informing the child about dysfunctional thoughts and their significance during psycho-education. The “ABC scheme” (according to A. Ellis) has proven helpful in the search for dysfunctional thoughts (A = activating experience, B = belief system, C = consequences).
For cognitive therapeutic interventions, the child must be able to examine his/her thoughts and name his/her feelings. Often, practicing those abilities is the first therapeutic step. Patients commonly do not initially succeed in differentiating reliably between levels of the cognitive model (thoughts vs. feelings) (e.g., “…then I think I am sad.”). If this is the case, the psychotherapist should work with the child on the identification of the child’s feelings first, using picture stories, comics, or photographs illustrating various emotions. Alternatives are tasks such as “charade of emotions.”
Charade of Emotions
“I would like to start this session with a game called “Charade of Emotions” which works as follows: On this sheet I have written down feelings (e.g. sadness, anger, happiness). Can you think of any other feelings? Now let us put the notes into that box, and in alternating sequence one of us will take out a note and do a pantomime representing the indicated feeling. This means you try to express that emotion without words.”
Since some children may feel insecure or awkward doing this, it is very helpful if the psychotherapist is the first to act in order to create a relaxed, humorous atmosphere.
The “Mood Barometer” is another tool to train the child’s ability to differentiate between various feelings.
The Mood Barometer
The child writes down feelings that are relevant to him/her and puts them in a hierarchical sequence (similar to a thermometer or barometer) or clockwise order. With the help of a slider or watch hand, the child informs the NET about his/her current feelings and at the same time become aware of them. Two to three times a day, one of the staff prompts the child to assess his/her feelings using the Mood Barometer. If the child has difficulty answering, the NET may give some feedback or pose a hypothesis (“Your shoulders and your gaze are down. I assume you are sad.”). Then this observation is discussed with the child.
Gradually the child will learn to recognize and to express feelings. Many children show great difficulty differentiating between various feelings and tend to repeatedly express similar or the same feelings. Those are the children in need of reflection with and detailed feedback from the NET.
If the child is sufficiently trained to recognize his/her feelings, the psychotherapist may start to query him/her about his/her dysfunctional thoughts (“What did you think about in this situation?”). Then together with the child a simple ABC-model is created (Table 6.2). With younger children the psychotherapist should be more active and give input, i.e., suggestions that the child understands well, such as thoughts closely connected with behavior. The older the child, the more elaborate the chains of thought that can be worked on.
Table 6.2
Prototype of an ABC-model
Activating experience (A) | Belief system (B) | Emotion and behavior/consequence (C) |
---|---|---|
Boy sitting in a bus and smiling at me | Decent boy. Maybe he also goes to my school. I think I should speak to him | Emotion: curiosity |
Response: looking into his eyes and speaking to him | ||
Boy sitting in a bus and smiling at me | Oh dear, why is the boy laughing? I don’t know him. Maybe there is still some jam on my face. Certainly he is laughing at me | Emotion: insecurity |
Response: quickly passing by and taking a seat somewhere else |
The following case illustrates our practical approach to create an ABC-model in a child with chronic pain.
Case Report – Maria, 15 Years, Pain Disorder (T = Therapist, C = Child)
T: When we discussed the vicious cycle, I explained how thoughts may have an impact on the pain experience. Every appraisal of a situation has some impact on what and how we feel. Can you still go with that? Or are there any questions left?
C: Well, I am often under the impression that I do not think at all. I just feel helpless when I am in pain.
T: Right. Thoughts often are ultra-fast, as quick as lightning, being nearly unrecognizable for us. This is the reason why they are called automatic thoughts. I’d like to illustrate the significance of thoughts with a little story.
Imagine, holidays are over and you are getting on the school bus for the first time again. A boy you have never seen before looks at you and smiles. In that moment you think: “Nice boy. Maybe he also goes to my school? I think I should speak to him.” How do you think you feel?”
C: I would be curious.
T: What will you do?
C: I think I will sit next to him and talk to him.
T: Okay, let’s write that down (T: makes a note on the ABC-model template). Now imagine, the same situation, the same boy, exactly the same smile. But, in this moment you are thinking “Oh dear, why is the boy laughing? I don’t know him. Maybe there is still some jam on my face.” How do you feel, and what will you be doing?
C: I suppose I am insecure. I would probably go and sit somewhere else in the bus.
T: Great. Could you please write this down in the template? What did you learn from this example?
C: Depending on what I’m thinking there will be different emotions.
T: That is correct! Do you mind if I ask you about your feelings and thoughts while you are experiencing pain every now and then in the upcoming sessions?
By means of the newly created ABC scheme, you can now work on the patient’s pain-related examples. Admittedly, the given example is somewhat prototypical. Mostly, the analysis of relationships between situations, thoughts, and feelings is not that simple. But with some support most patients will quickly recognize the given interrelations. Often it is advantageous to ask the patient about the thoughts he/she had in former stressful situations. Then the patient’s homework is to fill in his/her worksheet with his/her observations, for example, as a “diary of thoughts.” To prepare the worksheet, use a white sheet with three equal columns with the headlines “A,” “B,” and “C.” The child is asked to write down any stressful or unpleasant situation, a detailed description of Black Thoughts arising in this situation and the physical response to them.
Step 2: Distilling Dysfunctional Cognitions and Assumptions
Once the model is finalized and all negative thoughts are documented, the second step aims to identify the stressful thoughts that should be reviewed. It cannot be the goal of cognitive therapy to change all negative thoughts or feelings. Instead, we focus on those that are particularly stressful and dysfunctional. The following questions proved helpful in the identification of automatic thoughts (for a fuller discussion, see Stallard 2005 or Schlarb and Stavemann 2011):
1.
Basic question – “What were your thoughts in this situation?”
(a)
The basic question may be asked if the patient’s mood changes during the session.
(b)
The therapist may ask the patient to describe a difficult situation and then to ask the basic question.
(c)
The therapist may initiate a visualization of the depicted situation and then ask the basic question.
(d)
Have the patient re-experience the situation in a role play, and then ask the basic question.
2.
More questions to identify automatic thoughts:
(a)
“What do you think you were thinking about?”
(b)
“Is it possible that you were thinking about _________ or _________?” (therapist proposes a plausible alternative)
(c)
“Did you imagine something that could happen, or did you remember something?”
(d)
“What meaning did this situation have for you?”
(e)
“Did you think: _________?” (therapist proposes the opposite of the assumed answer)
3.
An alternative approach is indicated if there are any problems with the implementation of the previous approaches:
(a)
With a child having great difficulty with the approach described under 2) or children too young to have the required cognitive ability for reflection, it may be helpful to name several examples of Black Thoughts and ask directly if the child has ever had that specific thought.
(b)
It goes without saying that in addition to what is proposed in paragraph 2), it is also possible to go over those Black Thoughts most often mentioned by children with chronic pain. Those are:
“When I am in pain I can’t perform well in school.”
“I can’t do anything about my pain.”
“I can’t control my pain. The pain is controlling me. I lose control!”
“Perhaps the physicians did miss something after all?”
“Why me?”
“I can’t stand any more pain.”
“Being ill is awful.”
“Nobody can help me.”
“A life with pain is futile because I can’t achieve anything.”
“Nobody believes that I am in pain.”
“I hate my body for its pain.”
When several dysfunctional appraisals and cognitions have been identified, the child may choose one cognition that should be checked first for its relationship to reality. It is not always advisable to start with the “Blackest” Thoughts (i.e., “My mother hates me.” or “Awful things will happen to me.”). It is better to begin with thoughts that are more easily scrutinized in order to make the child see the success of the exercise.
Step 3: Scrutinizing Old and Dysfunctional Cognitions and Creating New and Functional Ones
Some of the pain-related Black Thoughts (e.g., “I can’t do anything about my pain.”) may already start to change after the first few days of inpatient pain therapy. This can occur due to learning from other patients or due to the experience that pain is not as inalterable as previously thought. This is a typical patient report:
“I used to think I couldn’t do anything about my pain. Now I know that with the help of various techniques (e.g. distraction-ABC) I will be able to manage my pain in such a way that I can go to school.”
In case a child reports this, you should point out that he/she has performed a reality check on his/her own, without any instruction, and compliment him/her for that. Since the child proved by himself/herself the mutability of Black Thoughts, he/she will be highly motivated to continue working on other Black Thoughts. Sometimes it may be helpful to ask for previous positive exceptions from Black Thoughts in order to emphasize the modifiability of thoughts and appraisals. Regarding dysfunctional cognitions, we use the following disputation techniques:
1.
Proof/counterproof (logical disputing): First, the child is prompted to describe his/her Black Thought in detail (“Could you please describe exactly the Black Thought that made you scared and lose control? What would it mean to you if you didn’t actually pass the exam? What would that tell us about you?”). Then the child’s task is to prove the soundness of this Black Thought to the psychotherapist. Typically this technique will work only with children who show the necessary ability for reflection and abstraction. With Black Thoughts affecting the child’s mood or causing stress, it may well be that the child cannot generate any ideas. In this case the psychotherapist could give the child one or two obvious ideas as to how to counterprove the thoughts.
2.
Querying catastrophes (balancing out): Children with chronic pain are usually prone to pain-related catastrophizing (“While I’m in pain, I can’t concentrate.”). If this is the case, we start searching for the worst-case scenario together with the child (“I will have to leave school before graduation, and I will have to live on the street in winter.”). Then we describe the best scenario imaginable (“Pain will have totally vanished soon, and I will perform very well all the time.”). Finally the child should depict the most probable scenario (“Sometimes it will be difficult to perform well while in pain. But sometimes I will perform as well as I did before my pain problem began.”). Then the psychotherapist asks the child to search for reasons in favor of the most probable scenario.
3.
How much does your Black Thought help you? (hedonistic disputing): We instruct the child to make a cost/benefit analysis of his/her thought and its associated behavior, differentiating between short-term and long-term consequences. Table 6.3 gives an example of a hedonistic disputing of the thought “Being in pain is awful.”
Table 6.3
Hedonistic dispute of the thought “Being in pain is awful”
Cost | Benefit | |
---|---|---|
Short-term | I start getting anxious and tense, which makes the pain worse | When I complain I get help from other people |
When I am not feeling good my teachers are less strict | ||
Long-term | I don’t search for solutions but keep on complaining | There is no long-term benefit |
This way my pain disorder won’t get better |
4.
Extending the ABC-model: In order to work on new cognitions, the ABC-model may be extended. Having explored a stressful situation, the psychotherapist asks: “How would you like to feel in that situation, and what would you like to do?” During the following brainstorming session where the child and his psychotherapist find out which thought might be necessary for an emotional or behavioral change, a change of viewpoint may be worthwhile (“What would your girlfriend think about that?”). Then the patient’s task is to search for arguments proving the alternative thought. This may be supported by a short role play where the psychotherapist is taking the child’s point of view. In the discussion that follows, the patient should find arguments in favor of and some against his/her new point of view.
5.
Behavioral experiments (empirical disputing): Dysfunctional thoughts may also be tested against reality by means of formal reality tests (behavioral experiment), a stepped procedure more suited to children aged 12 years and up:
(a)
Isolate the thought to be tested (e.g., “While in pain I can’t do anything.”). You may use the cognitive techniques mentioned before (e.g., proof/counterproof) in order to increase the child’s motivation to undergo a behavioral experiment.
(b)
Depict a detailed scenario suited to testing the thought (e.g., “While in pain I can’t play the piano.”). Then make an exact plan of all the variables to be tested during the behavioral experiment (e.g., “For how long would you have to play the piano in order to have a counterproof?”)
(c)
Accomplishing the behavioral experiment.
(d)
Drawing a conclusion and working on a new functional thought (e.g., “I can’t play the piano as long as before, but I can play for some time, and this means a lot of fun for me.”).
Children younger than 12 years benefit from a much reduced disputational approach. Typically their thoughts are less complex, and often a dichotomous distinction (black vs. colored) is sufficient:
(a)
The psychotherapist is working on Black Thoughts about pain. For hedonistic disputing it is only necessary to pose the simple question “Does it help you to think like that?”
(b)
As a next step, we search for Colored Thoughts together. The psychotherapist may make his/her own suggestions in order to facilitate the process.
(c)
In the course of treatment, those new Colored Thoughts should be practiced with the child (see Step 4).
Step 4: Practicing the New Functional Thought
Towards the end of this exercise the child will have acquired one or more functional cognitions. These new thoughts should be phrased in the child’s own words, use the “I” mode and be as detailed as possible (a bad example would be “Everything will be okay.”). Unfortunately, just gaining insight isn’t enough to have a long-lasting positive effect on the child’s experience. The psychotherapist should inform the child of this (“It is the same as with learning vocabulary. It is not enough to read the words once in order to be able to reproduce them in an exam.”). It is essential to regularly apply the new helpful cognitions and evaluate them for their effectiveness. To this end, behavioral experiments may be used (Step 3). In addition, the following training methods have proven effective:
1.
Creative techniques. The patient creates a collage using the notes on the functional new thoughts. Depending on the patient’s creativity, he/she may write or paint a comic around those helpful thoughts together with the psychotherapist. Painting a Pain Fighter (Sect. 6.4.2) is the combination of a cognitive and an imaginative technique. The collage should be placed in a prominent location to be seen in everyday life. Together with the psychotherapist, the child decides how those thoughts portrayed in the collage could also be practiced in everyday life (e.g., starting a list of thoughts on a sheet of paper fixed to the cover of the child’s school book).
2.
Role play and flashcards. Functional thoughts may also be practiced in a role play in which the child is using functional thoughts in a difficult situation and rates their effectiveness. The child may write down the new functional thoughts on an index card (flashcard) in order to read them during the role play. These flashcards may also be used in everyday life. Any further favorable thought may be recorded on an extra flashcard, with the positive experience from it on its back (“lesson passed ☺,” “distraction techniques were applied successfully,” etc.).
3.
Imagination. If the child has the ability to imagine scenes, the psychotherapist may encourage him to imagine these helpful scenes during an imaginary experience, such as guided imagery or hypnosis.
4.
List of thoughts/interruption of thoughts and positive self-instruction. Creating a list of Black Thoughts may be used to instruct children to pay more attention to actually applying Colored Thoughts. One possible way of doing so is to interrupt a Black Thought whenever it is noticed (e.g., by saying out loud STOP) and replace it with a Colored Thought. When the child has succeeded in doing so, he/she should mark this on the list of thoughts (tally list) (bar on the list; other sign like a paper clip changing from the right to the left jean pocket).
6.4.3.2 Three Letters
Some patients are not that happy with a purely cognitive approach. They don’t really like to extensively dispute their thoughts. These patients (of course this approach fits for the other patients as well) might be suited to writing down the “Three Letters” before deciding to learn more cognitive interventions or to learn a more acceptance-oriented approach.
This technique will work only if the child has the necessary cognitive ability (typically from 13 years and up) and is willing to take on the required homework.
The psychotherapist asks the child to write three letters (for a detailed instruction, see Chap. 9, Worksheet #17). The third letter should be written immediately after the second letter is finished (only a short break is allowed). Each letter should comprise about one written page. Some of the children will pack all necessary information into a letter of no longer than half a page; others will need 2 to 3 pages each:
1.
Letter 1. In this letter the patient describes how his/her life will be for the next 2 years in the best case (alternatively, until his/her next or the next but one birthday, 18th birthday, other significant future event, …) after this therapeutic session (alternatively, inpatient treatment program, outpatient psychotherapy, …). With this exercise the challenge is to write the letter from a future and first-person perspective to oneself in the present (“Dear Martin, two years have passed since you opted for the inpatient pain therapy. Since then, …”). For the intervention to be effective, it is important that the patient describes his/her development in all relevant aspects very precisely (i.e., not just concerning pain but also friends, relationships, school, family, leisure activities) and comments on which decisions, judgments, and behavior contributed to steering life into just that direction (incorrect: “I won the lottery, and suddenly everybody was overwhelmingly nice to me.” Correct: the child is supposed to focus on his/her own efforts and changes).
2.
Letter 2. The second letter is the counterpart of the first one. As in the first letter, it is written from the future to oneself living in the present and reports about the worst imaginable course of the pain condition (same formal criteria as for letter 1). The letter should describe precisely the writer’s own behavior, appraisals, and decisions contributing to that disastrous course. It should be emphasized again how important it is to continue with writing letter 3 immediately after the second letter and not to pause; otherwise, there is the risk that the negative feelings evoked by writing letter 2 will result in a negative trance that may have a negative impact on the pain and the mood for days.
3.
Letter 3. Most patients regard this letter as the one most difficult to write. While it is quite simple to imagine the best possible or the worst possible course, it is a challenge to imagine a realistic one, taking into account one’s own personality and perception of abilities. And that is exactly the aim of letter 3: to find a realistic course; somewhere between the extremes described in letters 1 and 2 regarding the patient’s own behavior, appraisals, and decisions.
These letters are well suited to gaining an overview of all relevant parts of the child’s life, his/her own perspectives of change, important resources, and critical (cognitive) factors relevant for therapy. It is then quite easy to filter all important negative cognitions out of the Three Letters together with the child. Often you will find those written down word by word. An invaluable benefit of that intervention is that it will help the child analyze his/her situation more clearly. Reaching this clarity by his/her own effort will make the child proud. Writing the Three Letters allows the child to ponder all relevant areas of life, presumably for the first time.
This intervention should be avoided with children with a current depressive episode. If suicide is the only solution given at the end of letter 2, the child should be complimented for his/her courage in writing down his/her worst fears. This information should then be made known to the psychotherapist for immediate attention. Any real current danger of a suicide attempt may reflect a depressive comorbidity which will require further action.
6.4.3.3 Acceptance-Based Methods
At the end of the last chapter, we explained a technique (“the Three Letters”) that allows for the elaboration of pain-related desires and goals. That intervention is also well suited as a preparation for the work with acceptance-based cognitive techniques that do not focus on the modification of thoughts. Research results offer preliminary support for the view that an acceptance-based approach is effective in both adults and children with severe chronic pain (Wicksell et al. 2009, 2011). In children with a pain disorder, the acceptance of pain may result in a better quality of life (Feinstein et al. 2011). Pain acceptance seems to have an inverse relationship to emotional impairment and pain intensity (Wallace et al. 2011).
What exactly is the difference between a cognitive and an acceptance-based approach? And how can the difference between acceptance and resignation be explained to the patient and his parents?
Contrary to the cognitive approach, the focus of an acceptance-based approach is not to teach alternative appraisals or lines of thought concerning pain but to reach the goals important to the patient in the intermediate or long-term future, irrespective of pain intensity. The focus of pain therapy shifts from pain reduction to a meaningful and happy life even if it is still painful (Wicksell et al. 2007). As mentioned before, the Three Letters can be the first step to identifying the long-term goals of the child.
The advantage of an acceptance-based approach is that pain is no longer regarded as an enemy that should be modified, reduced, or circumvented. Thus, the symptom distress of the whole family system arising from the pain-reduction battle can be eased. This approach is especially helpful if long-standing chronic pain makes quick pain reduction seem improbable. Because of their severe impairment in school, these children are at high risk of dropping out. Therefore, action is badly needed although options for change are minimal. The acceptance-based approach can be implemented in four steps.
Step 1: Understanding the Idea of the Acceptance-Based Approach
The acceptance-based approach aims to build mindfulness towards, and acceptance of one’s own situation and to value one’s own abilities. It also changes the language-based context provided by dysfunctional thoughts by increasing the neutral distance to cognitive processes (cognitive defusion, see below). The procedure should be discussed with the parents and their child in advance, because many families are somatic fixated and thus antagonistic towards psychological pain treatment. If not fully informed, they may misunderstand this approach as a sign of resignation, which may lead to a premature termination of treatment. The first step is to make the patient and his/her family familiar with the specific idea of the acceptance-based approach and the differences between acceptance and resignation.
Exercise: Getting Familiar with the Acceptance-Based Attitude
“Today I’d like you to write down all your thoughts about your pain on index cards. When you are done please stand up in front of me. I will throw the cards at you one by one. You should try not to let the cards touch you. After this we will do a second exercise. This time you will just stand there and hold your hand in front of you, palm up. I will place the cards in your hand, and the only thing you have to do is look at them.”
Having finished the exercise, the psychotherapist will ask the child which one of the exercises was more exhausting and took more effort (usually it will be the first one – avoiding the cards – if the psychotherapist is a good pitcher). Psychotherapist and child will figure out the essentials of an acceptance-based approach together and discuss whether it seems suitable for the child. It is essential to clarify the difference between an acceptance-based approach and resignation. For many children acceptance is not that different from resignation. The difference may be illustrated as follows:
Example: Explanation of the Difference Between Acceptance and Resignation
“With an acceptance-based approach I choose a life following my own goals, irrespective of the existence of one, two, or more aspects of life that bother me. In other words, with active pain coping I can achieve all those things in everyday life that I planned for a pain-free life. Resignation is if I give up the battle against pain out of exhaustion or desperation, assuming my life will never change for the better, and could even deteriorate.”
This shows that acceptance and resignation are very different attitudes based on different ideas, and although the word “acceptance” is suggestive of passivity, the acceptance-based approach is an active coping approach. An acceptance-based approach contributes to the disconnection of emotional distress and pain perception (Wicksell et al. 2009, 2011).
Step 2: Training a Neutral and Mindful Perception
Once the patient has recognized the difference between an acceptance-based and a resignation-based attitude, he/she should understand that the thoughts and appraisals (“If in pain, I can’t attend school.”) and perceptions of body signals (i.e., pressing pain on the forehead, a pulling intestinal pain, shallow breathing) that so far have determined everyday life are nothing more and nothing less than – thoughts, appraisals, and perceptions. This can only be fully understood if the child is aware of his/her thoughts, appraisals, and perception of body signals.
Mindfulness is one central idea of acceptance-based therapy and describes an active process of perception and an attitude of neutrality and freedom from judgment. This concept is often conveyed by a spiritual attitude. In this book mindfulness is defined as consciously noticing what is going on in the here and now. In the beginning, this is not a simple task, for children or adults. Thus, it is important to practice mindful perception, using the 5-4-3-2-1 technique (Sect. 6.4.1) or several other perception exercises (e.g., to focus on one’s breathing, to carefully focus on what is sensed with one’s own sensory channels in this moment, body scan).
Step 3: Cognitive Defusion
If a child succeeds in being aware of his/her thoughts, appraisals, and feelings, Step 3 is to just perceive one’s thoughts, appraisals, and body signals from the position of a mindful observer. This implies that thoughts, appraisals, or perceptions of body signals are neither devalued nor followed; instead, they are observed from a distance (like clouds passing by). This mental state is called cognitive defusion. The aim is not to change the content of the thoughts, appraisals, or perceptions but to create some sort of inner distance (metalevel: I have a thought or feeling, but I’m not the thought or feeling). Cognitive defusion creates a distance from one’s own experience (this is, e.g., comparable to various distancing techniques used in trauma therapy) and enables a reduction of the emotional burden.
Case Report: Caroline (Aged 17 Years), Pain Disorder with Backache
“First of all now you know the basic ideas contributing to a happy life irrespective of the pain. By observing your thoughts you have learned that most of them follow a simple logic: “I can’t do _______ because I am in so much pain. Therefore I will never achieve ____ and will stay unhappy.” Now it’s time to introduce a small modification to this logic. Instead of “I can’t do _____ because I am in so much pain”, please think “I have the thought that I can’t achieve ____ because of my severe pain”. Do you feel a difference in your thinking and feeling? Please write down how often you could change your thoughts in this way and if you could feel a difference.”
A variant of verbal cognitive defusion is to give names to one’s thoughts (e.g., “pain monster”). This may be done in a humorous way. Maybe the child could even tickle his pain monster or find other methods to attain greater inner distance by externalizing his thoughts.
Another variant of cognitive defusion is to alienate the dysfunctional thoughts. This is achieved by repeating a thought in your head with a distorted voice, or with a modified speech melody, as soon as you notice the dysfunctional thought. Even if “pure neutrality” can’t be achieved, this exercise will create an inner distance to those thoughts.
Step 4: Departure into a New Life
Once the child has learned how to attain some distance from his/her thoughts, he/she will start to identify important goals for his/her future life and essential inner values that they are based on (i.e., honesty, discipline, self-confidence). Finally, we will reflect on how the patient’s behavior (e.g., passive pain coping) matches those goals and if the goals can be met by sticking to that behavior. In case the patient decides that his/her behavior (e.g., not attending school when in pain) has so far not helped him/her, the child can explore with the psychotherapist future steps to reach the desired goals (e.g., active pain coping). This is usually a lengthy process. So, it is essential to regularly practice these exercises and record their success for the next therapeutic session.
In closing, we would like to report an interesting clinical observation from children who have successfully practiced mindfulness techniques for a long time. They unanimously report that at first they perceived their pain as less stressful but of unchanged intensity. Within a short time, however, their pain perception was reduced. In many children, with further practice it was reduced to such a degree that they felt (nearly) pain free. They “just stopped thinking about” their pain. This clinical observation is in accordance with the findings of Wicksell et al. (2011) who detected a major decrease in pain perception in children with chronic pain when using an acceptance-based approach.
6.4.4 Techniques to Reduce Muscular Tension: Stay Cool!
“Great! I can watch my body relax.” – Chris (14 years) during a biofeedback session
Procedures reducing muscular tension are of great importance in pain therapy. Their use with children is well investigated (Palermo et al. 2010). Based on these studies, relaxation techniques are recommended as a procedure of choice in chronic paediatric pain. But unfortunately these studies do not take into account the fact that the meta-analyses in most cases are based on investigations of children with migraine or tension-type headache with only moderate pain-related disability. In many studies the participants were recruited via newspaper advertisements – thus, some of the participants were not pain patients with significant pain impairment or disability but children with pain who neither felt that ill nor suffered from pain, pain-related fears, or impairment in everyday life. We believe that it is not advisable to confer those results to children with severe chronic pain without some precaution. In our experience in the treatment of paediatric chronic pain patients, both autogenic training (AT) and – to a lesser degree – progressive muscle relaxation according to Jacobson (PMR) may even have a negative impact on the patient.
How can this discrepancy be explained? Children with severe chronic pain have an increased body awareness, often accompanied by fear. Furthermore, many of these children know that severe pain may be associated with stressful memories or thoughts. In these patients, calm or relaxation often results in increased interoceptive pain perception and/or exposure with aversive thoughts. Thus, they experience an increase in tension instead of relaxation. Hence, classical relaxation techniques should only be used after detailed education and when the technique seems to be suitable for the patient.
Consequently, during inpatient pain therapy, some children don’t want to be trained in classical relaxation techniques. But all are trained in TENS therapy (with the exception of children with abdominal pain) and biofeedback. Those techniques provide the effect of relaxation as well as increasing one’s distance from interoceptive stimuli. Irrespective of which technique is trained, the education in relaxation techniques has three goals:
1.
To learn self-initiated and voluntary relaxation in stressful situations
2.
To gain active control of physiological activity in order to decrease pain
3.
To strengthen the patient’s belief in self-efficacy
Training in those relaxation techniques takes several sessions. The patient should practice daily and record his/her success, especially during stressful situations (scale 0 to 10).
6.4.4.1 Progressive Muscle Relaxation According to Jacobson (PMR)
Applying this technique, groups of muscles are tensed and then relaxed in a predefined sequence, always starting with the large muscles of the extremities and proceeding to the trunk muscles and finally to the small muscles of the face:
1.
Activation of the muscle group
2.
Sensing the muscular tension
3.
Gradual relaxation of the respective muscle group
4.
Focusing one’s attention on the feeling of relaxation within the relaxed muscles