(1)
Wisconsin Rehabilitation Medicine Professionals, Milwaukee, WI, USA
In this book we have looked at the many factors that complicate the treatment of chronic pain in the United States from the popularity of treatments with questionable or controversial evidence to disability systems that do not encourage functional improvements. Many biopsychosocial factors also affect chronic pain in patients from fear and resentment to anger and feelings of being wronged or a victim.
These confounding factors, as seen in Table 12.1, include:
Table 12.1
Factors which complicate chronic pain in patients
Influences on patient | Psychological, social, vocational, legal |
Enabling of pain behaviors | Family, clinicians |
Uncoordinated pain treatment | Excessive surgeries, injections, opioids |
Disability/compensation systems | Can reward dysfunction |
Lack of multidisciplinary care | Few programs; little awareness |
1.
The patient’s psychological, social, vocational, and legal milieu
2.
Pain enabling behavior of family and clinicians
3.
Uncoordinated, unimodal treatment, especially opioids. Injections/interventional approaches and repeated surgeries
4.
Disability systems that reward dysfunction
5.
Lack of multidisciplinary pain programs and a multidisciplinary approach
Despite the popularity and favorable reimbursement patterns of unimodal and uncoordinated treatment, it is clear in the literature and evidence-based studies that repeated surgeries and injections, long-term use of narcotics are increasing and not reducing the number of people who suffer from chronic pain.
We know from countless patient cases that rest, excessive time off from work, excessive focus on pain, and the attitude of “poor me” are “yellow flags” or predictors of continual disability and undesirable pain outcomes in chronic pain patients. Sadly, many patients have been told to abstain from work, their usual activities and to rely on medications—which will not improve their chronic pain but will add to their “disability conviction.”
Conversely, it is clear that a multidisciplinary approach to pain rehabilitation that addresses mind, body, social, and behavioral issues shows positive outcomes. The treatment focuses on the patient’s return to function not relief of pain and seeks to induce a change in the patient’s attitude toward pain as we see in Table 12.2. These positive outcomes are evident whether they are quantified in pain and quality of life, healthcare costs or a patient’s dependency on drugs and the healthcare system, as we as we saw in Chap. 8.
Table 12.2
Keys to patient recovery from pain
Resume activities as soon as possible |
Participate in care and treatment decisions |
Accept that pain will not completely be eliminated |
Avoid self-pity and develop positive attitude |
It is likely that as “accountable” health plans develop in the United States, pegged to total and lifetime costs of conditions and diseases and not short-term “snapshots,” the value of multidisciplinary programs in pain rehabilitation will be newly appreciated and their availability restored. Even as multidisciplinary pain programs have all but vanished in the United States, they are growing in much of the rest of the world for the simple reason that they work.
For example, as we saw in Chap. 9, a “back attack” should be a wake-up call and an occasion to reeducate a patient about his health status and lifestyle. While a back attack may not appear as serious as a cardiovascular event, its effect on the patient’s quality of life and dependence on the healthcare system are similar. That is why the COST B13 Working Group established “European guidelines for the management of chronic nonspecific low back pain” (AACVPR 2015; Airaksinen et al. 2006) similar to American Association of Cardiovascular and Pulmonary Rehabilitation (AACVPR) guidelines which recognize the importance of physical, psychological, and social changes in reducing death and disability from a heart attack.
Multidisciplinary treatment is especially effective in helping patients change their “pain behaviors” which have been recognized as factors that increase the patient’s pain and disability conviction. Certainly it is natural for medical professionals to respond to a patient’s pain with empathy, sympathy, and the provision of medications. Employers and insurers often respond with granting the patient time off from work and financial settlements and family members often excuse the patient from his responsibilities.
But, as any parent can tell you, behaviors that are “rewarded” in this fashion will become more frequent or “reinforced.” Behavior that is ignored or negatively reinforced will tend to disappear. In keeping with such principles of behavioral modification, multidisciplinary pain treatment focuses on “behavioral shaping”—rewarding well behaviors such as active participation in therapies and a positive attitude and ignoring sick behaviors whether drug seeking or excessive physical displays of pain.
In countries where certain diseases/conditions are not highly rewarded by compensation, such as from automobile injuries, claims of harm are seen to be less. In other situations where there is significant litigation and potential for financial reward, claims of injury and pain increase.
A Movie Addresses Chronic Pain
In 2014, a movie was released in the United States which showed both the relentless daily emotional and physical toll of chronic pain and the switches in emotions and attitude that often precede a patient improving.
The movie, Cake, starred actress Jennifer Aniston who plays a well-to-do California lawyer suffering from chronic pain, the cause of which viewers do not know. Claire is so wracked with pain she cannot even sit up in the car. Her housekeeper, Silvana, drives her to the doctors and other places she needs to go while she reclines in the car.
Like so many real chronic pain patients recovering from car and work accidents or living with pain that has no clear cause, Claire has become addicted to opioids and her entire life revolves around getting drugs and hiding her addicted state from others. One scene shows how she manipulates and charms a doctor into writing a prescription that does not have authorization; another scene follows Claire and her housekeeper Silvana as they drive all the way to Tijuana to procure Claire’s drugs which she then hides in a statue as they cross back into the United States.
One of the definitions of addiction is pursuit and use of a needed substance regardless of unwanted consequences and Claire and Silvana’s Tijuana foray is a case in point: they are stopped by the authorities for the opioids they are trying to smuggle in and only because Claire’s husband, from whom she has become estranged, is a government official do they escape prosecution and/or jail.
Anyone who has had chronic pain or treated it will recognize Claire’s cluster of psychological and behavioral responses to her condition that make her pain worse not better: overriding focus on the pain, a narrowing life and isolation, “pain behaviors” that are rewarded by others and a feeling of being an innocent victim who has been wronged.
Cake also demonstrates a treatment precept we have stressed repeatedly in this book: long-term opioid treatment for chronic pain is almost never indicated; it will not relieve pain on a long-term basis and can worsen a patient’s pain through opioid-induced hyperalgesia. In treating chronic pain patients, opioid therapy is only valuable when used to help a patient participate in the therapies, especially physical therapy, that address the pain—and not to just cover it up, as we discussed in Chap. 6. Claire’s downward spiral on long-term opioids, both worsening her pain and her mental state, are clearly portrayed.
At the beginning of the movie, Claire does not identify with others in a chronic pain support group and unleashes sarcastic remarks that get her banned from the group. She embraces fear, remains in isolation and takes her anger out against others. However, later in the movie, viewers became aware that it is not just physical pain but emotional pain that is driving Claire’s suffering. Once she is able to get “in touch” with the emotions behind her pain, her anger begins to dissipate.
Following the suicide of another woman in the chronic pain group—which is replayed through flashbacks and dreams—Claire befriends the widower husband who is now raising the son alone. By spending time with the husband and son, Claire comes to get “out of herself” as she symbolically fills the place of the lost mother and wife. She sees she has something to offer, loses her self-focus, and “reframes” her pain.
Toward the end of the movie, Claire gets another “lesson” in the existence of others’ pain besides her own. Her housekeeper, Silvana, loses her temper at Claire’s self-centered self-pity after having to save Claire from a suicide attempt in which she lies down on train tracks. You “treat me like a dog” and “pay me like a dog,” too screams Silvana in Spanish, though it is not clear that Claire understands the language. The tirade seems to be a wake-up call to Claire.
Families and friends of patients with chronic pain will no doubt relate to Silvana’s outburst from spending months or even years exhibiting patience and compassion to increasingly irascible pain sufferers. Strained family relations are a hallmark of chronic pain conditions—yet they change for the better when patients adopt newer attitudes.
Cake’s dramatic conclusion in which Claire finds new meaning in her life after wishing for death clearly shows the power of acceptance in chronic pain patients. Toward the end of the movie, Claire allows herself to feel the emotions she has been covering up with opioids. Most recovery programs whether for addiction or previous trauma focus on processing unpleasant emotions rather than “pushing them down.”
Several scenes in Cake also demonstrate the “hurt versus harm” dichotomy that we have stressed in this book. Claire predictably clashes with her physical therapist over her unwillingness to do exercises that hurt her in the short-term even though they will help her in the long run. But, in the last scene in the movie, Claire signals that she is willing to endure the “hurt” to recover from pain. She enacts an effort-filled and successful attempt to finally sit up in the car for this first time. It serves as a visual metaphor for her resolution to face her pain, reframe it and not let it control her life.
The Power of Acceptance
The Most Profound Choice In Life is Either Accept the Things As They are or to Accept the Responsibility For Changing Them
In Chap. 2, we looked at the book The Promise: Never Have Another Negative Thought Again by Graham Price (Pearson 2013) which chronicles this acceptance process—a phenomenon that Price calls “pacceptance” (for positive acceptance) that is, arguably, the single biggest predictor of improvement in chronic pain patients. The process of acceptance is often linked to the patients’ realization that their pain and the events that caused it cannot be undone and will not go away.
Many patients believe that there is, or should be, a magic pill or procedure to take away their chronic pain and are disappointed to hear that we can’t “cure” it—though we can help them manage it well. We medical professionals share their disappointment.
When patients finally accept that their pain cannot be “cured,” it can be a bittersweet moment in which they surrender both their dreams and their battle and wave the white flag. In 12-Step recovery programs from addiction, this is the moment when a person has hit a “bottom” and is “sick and tired of being sick and tired.” This moment of “enough” causes a shift in perspective in which a patient often reframes his situation and becomes willing to try a new attitude and a new path for the first time. Often patients also accept at this point that their pain and situation are no one’s particular “fault”—whether an employer, doctor, motorist, or surgeon. Renouncing anger, resentment, remorse, and even anger at themselves greatly help patients control their pain as we explored in previous chapters.
After hitting a “bottom” in which they admit they are powerless over their chronic pain, patients often become open-minded and “come to believe” that a new and different treatment path could work. They proceed to place their trust in a multidisciplinary approach or their physical therapist and psychologist for the first time—despite their doubts that the recommendations of these clinicians will work. In a sense, patients have become so frustrated and discouraged with their current path, they have become open-minded and “teachable.”
There is another change that occurs when pain patients undergo this acceptance process: they became active participants in their pain rehabilitation. Most current unimodal pain treatment reduces patients to passively taking a pill or submitting to injections or surgery; with a new, acceptant attitude, a patient now partners with his clinicians—actively working his treatments. Exhorting patients to act as their own “healer” (in conjunction with other medical professionals) can be disarming to patients because it is at variance with much current medical practice. But self-management, self-efficacy, and self-care are the foundation of the multidisciplinary approach to chronic pain—and why it works so well.